Supporting Canadian Children with Cerebral Palsy

Post Inception Updates

Handi-Care Intl. started in 2014, a new initiative to help children with disabilities and their families in Ontario, by providing added support towards their rehabilitation needs. When a family has a child with a disability, there are many expenses that are not covered by provincial health plans, government support programs or private health insurance. In particular HCI has identified Selective Dorsal Rhizotomy (SDR) as a treatment option that is not available in Ontario.

There are 50,000 Canadians with cerebral palsy (CP). One in every 500 babies is affected and one in three of premature babies can be impacted by CP. CP is a non-degenerative neurological condition that impacts how the muscles and brain communicate. There are several types of CP, with the most common being spastic CP. There is no cure for spastic CP, but there are various treatments that help to reduce muscle spasticity. One of these treatments is Selective Dorsal Rhizotomy (SDR), which can help eliminate spasticity and reduce the need for invasive, painful orthopedic surgeries later in life. For some children it can help improve their mobility, sometimes even allowing them to walk with a walker or independently. It can also help children transition from position to position and can make some of the activities of daily living (toileting, dressing, carrying, etc.) easier.

This treatment is not currently available in Ontario. A less invasive technique was developed by Dr. T.S. Park at St. Louis Children’s Hospital, St.Louis, USA. The majority of families undertaking the surgery at St. Louis Children’s Hospital have not been successful in getting government funding for the surgery. In fact, it has been such a challenge that Global News has produced a series chronicling the challenges: See more

The cost of the surgery is approximately $50,000 U.S. (though can vary from child to child, depending on the extent of surgery required). The cost of physiotherapy is significant (an average of $120/hour is common, with therapy being required 5 times/week for 1-2 years). The cost for families to fund this surgery and necessary rehabilitation can be close to $150,000 when families account for surgical costs, physiotherapy costs, other incurred expenses that are required during a one month stay post-surgery in St. Louis, and for many families, the cost of losing one income as a parent is required to take the child to post-surgical appointments/physiotherapy following the surgery.

Many families are funding the surgery by holding personal fundraising campaigns to pay for the procedure. Currently, families often use crowdfunding websites such as gofundme.com or kickstarter.com to help their fundraising campaigns; however, these websites do not offer donors tax receipts and actually profit from donations by taking a high percentage of dollars raised during campaigns.

As a registered charity with a mandate to focus on rehabilitation services for children, Handi-Care Intl is filling this void by supporting families with their fundraising efforts.

Post Inception Updates
As of Nov. 2017, HCI has helped with 6 surgeries and post SDR rehab. Currently raising funds for 4 who are getting the surgery in 2018. Another 4 applications are in process.

To donate to a specific child or any child for this life changing treatment please Click on the "DONATE NOW" button below:

 


For more details on the SDR surgery and its benefits, please click on the following link:

http://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticity/about-selective-dorsal-rhizotomy-sdr