Post Inception Updates
In 2014, Handi-Care Intl. started a new initiative to help
children with disabilities and their families in Canada, by providing
added support towards their rehabilitation needs. When a family has a
child with a disability, there are many expenses that are not covered by
provincial health plans, government support programs or private health
insurance. In particular HCI has identified Selective Dorsal Rhizotomy
(SDR) as a treatment option that is not available in most provinces in Canada.
There are 50,000 Canadians with cerebral palsy (CP). One in every 500
babies is affected and one in three of premature babies can be impacted
by CP. CP is a non-degenerative neurological condition that impacts how
the brain communicates. There are several types of CP, with
the most common being spastic CP. There is no cure for spastic CP, but
there are various treatments that help to reduce muscle spasticity. One
of these treatments is Selective Dorsal Rhizotomy (SDR), which can help
eliminate spasticity and reduce the need for invasive, painful
orthopedic surgeries later in life. For some children it can
help improve their mobility, sometimes even allowing them to walk with a
walker or independently. It can also help children transition from
position to position and can make some of the activities of daily living
(toileting, dressing, carrying, etc.) easier.
A less invasive technique for SDR surgery was developed by Dr. T.S. Park at
St. Louis Children's Hospital, St.Louis, USA. The majority of families
undertaking the surgery at St. Louis Children's Hospital have not been
successful in getting government funding in Canada for the surgery. In fact, it
has been such a challenge that Global News has produced a series
chronicling the challenges: See more
The cost of the surgery is approximately $50,000 U.S. (though can
vary from child to child, depending on the extent of surgery required).
The cost of post surgery physiotherapy is significant (an average of $150/hour is
common, with therapy being required 5 times/week for 1-2 years). The
cost for families to fund this surgery and necessary rehabilitation can
be close to $200,000, taking into account the cost for surgery,
physiotherapy, therapy equipment, other expenses that are incurred during a
one month stay in St. Louis, and for many families, the
cost of losing one income as a parent is required to take the child to
post-surgical appointments/physiotherapy following the surgery.
Many families are funding the surgery by holding personal
fundraising campaigns to pay for the procedure. Currently, families
often use crowdfunding websites such as gofundme.com or kickstarter.com
to help their fundraising campaigns; however, these websites do not
offer donors tax receipts and actually profit from donations by taking a
high percentage of dollars raised during campaigns. This discourages donors from being as generous as they could be if they go through a registered charitable organization.
As a registered charity with a mandate to focus on rehabilitation
services for children, Handi-Care Intl is filling this void by
supporting families with their fundraising efforts.
Post Inception Updates
of June. 2019, HCI has helped with 15 surgeries and post SDR rehab.
Currently raising funds for 4 who are getting the surgeries in 2019 and 2020.
Another 4 applications are in process.
To donate to a specific child or any child for this life changing treatment please Click on the "DONATE NOW" button below:
For more details on the SDR surgery and its benefits, please click on the following link: